SPRINGFIELD – Duchenne Muscular Dystrophy – also known as DMD – is a rare disorder, and severe if not caught early enough to be treated. State Senator Julie Morrison sponsored a law that will require all newborns to be screened for DMD.

“DMD is a devastating disease that tragically takes the lives of children far too soon,” said Morrison (D-Lake Forest). “This law will increase newborn screening and early intervention for this rare but fatal disease.”

Duchenne Muscular Dystrophy is a genetic disorder caused by a change in the dystrophin gene affecting about 20,000 babies each year worldwide. It is characterized by the progressive loss of muscle, which results in deterioration of the skeletal, heart, and lung muscles. Because the dystrophin gene is found on the X-chromosome, it primarily affects males, while females are typically carriers.

By the time the symptoms of DMD are detected, it is typically too late to treat. Additionally, it takes 2.5 years on average to diagnose after caregivers first notice symptoms – giving parents little to no time to receive help for their children. Senate Bill 2658 will require each newborn to be screened for the disease, giving those diagnosed the ability to receive effective treatment.

“Early diagnosis allows for the highest chance of survival,” said Morrison. “This law will save precious lives.”

Senate Bill 2658 was signed into law Friday and takes effect immediately.